October 2013 aged 24, I was diagnosed with Generalised Dystonia. The symptoms started in June 2013, from the legs which gradually spread upwards to the rest of the body. At first, no one could see that there was anything wrong with me but I had a strange feeling of muscles moving uncontrollably. I thought it was a temporary condition that would soon disappear. However, it gradually spread to the rest of the body and once it reached the jaw muscles I became very anxious. I started to worry that the condition may be permanent and cause serious damage to the body.
From then on (September 2013), the symptoms became visible – quite often I had uncontrollable shaking and twisting, hypertension, panic attacks and vertigo. Not only that, I had episodes of pain randomly attacking different parts of the body and it even got to the point where I thought the condition might be life threatening. I even left last words for my mum as I thought this might be the end. The feeling of despair and hopelessness is almost indescribable. I was lost in complete darkness. At times, it felt like I was on the edge of a precipice with no one to help me and nowhere else to turn.
Finally, with the help from my mum, I made a resolute decision to receive treatment in South Korea although I was unsure whether it would be successful.
Miraculously, on 21st Jan. 2014 I returned to the UK after being fully cured of Dystonia and TMD. It may sound overdramatic but I felt responsible as one of the fortunate ones, to share my experience and make people aware that Dystonia is curable. Thus, I decided to make this blog in the hope that it would be helpful to those (and their families) who are facing struggles every day.