Welcome to the Cure for Dystonia blog. I am 24 years old, living in the UK with a full time job and was sadly diagnosed with Generalised Dystonia October 2013. However, I was fortunate enough to find a cure and by January 2014 I was able to return home to the UK having fully recovered. Through this blog I aim to provide and share as much information as possible with other Dystonia patients. Here is a guide to get the most out of this blog:
- My story – two subsections: my story and diary during treatment. ‘My Story’ describes the development of TMD and Dystonia and the struggles I had experienced up until the treatments. ‘Diary during treatment’ then follows but I suggest that you first have a read of the Framework and Treatment sections to aid your understanding. It is still a work in progress but I will be uploading regularly so readers can find out about my ups and downs up until the end of my treatment process. I appreciate that sequencing may be a problem for some readers (i.e. the first post seen is the latest post) but I recommend reading from the earliest date which can be done by scrolling down to the end of the page and navigating to the oldest post.
- Framework – explains concepts and theories behind FCST (Functional Cerebrospinal Therapy). It is recommended to read the subsections in chronological order.
- Treatment – explains all the available treatments at Dr Lee’s private medical practice (also known as FCST clinic)
- Pigeon Hole – miscellaneous information, tips and resources
- Clinical Cases – videos of successful treatments at FCST clinic
Brief history about myself:
- April 2012 – Discovery of TMD (self-diagnosis)
- March 2013 – Medical Diagnosis of TMD
- April 2013 – September 2013 – Dental Treatment for TMD
- June 2013 – Symptoms of Generalised Dystonia start
- October 2013 – Diagnosed with Generalised Dystonia and dental treatment discontinued
- October 2013 – FCST (Functional Cerebrospinal Therapy) started
- January 2014 – Full recovery from Generalised Dystonia and relief of TMD symptoms
Purpose of this blog:
It is common for patients suffering from chronic disorders to try many different types of allopathic and other alternative treatments. However, they are often let down after finding out that they do not have great or long lasting effects. I too have been through this – for years I had symptoms of TMD, which I didn’t identify until 2012, and I had tried most treatments available from medication, physiotherapy, acupuncture, chiropractic to sports therapy. Although some of these attempts were helpful, the symptoms would always return and I would soon be looking for the next best option to prevent the deterioration of my condition.
Consequently, I became aware and saddened by the fact that my life was all about consuming time and energy on finding effective (and sometimes expensive) treatments while my friends seemed to enjoy their youthful and passionate lives. Then, when Dystonia started, everything took a turn for the worst and my chance of living a normal life became slim. However, after 4 months of intense treatment, I finally have something to look forward to; a life without pain and limitations.
I would introduce FCST, as ‘clinically proven with sufficient scientific backing but one which lacks acknowledgement by the majority due to domination of existing ‘mainstream’ medicine’. At first, it was my mother who trusted in this treatment and convinced me to consider it as a final resort. I was sceptical but as the therapy progressed I came to realise that this was potentially the final treatment that would rule out the need for any further treatment.
Dr Lee, who treated me, developed this method of treatment. He was actually a patient himself over 30 years ago suffering from paralysis of his left arm. From seeking ways to treat the malfunctioning limb he found that the root cause of the problem with the nerves was structural distortion. But then he had to face another obstacle – an effective way to resolve the structural imbalance permanently. However, he did not give up and after years of extensive research and clinical trial and error; he was finally successful in developing a cure and he named it FCST (which in essence, focuses on TMJ balance). Over the past decade, Dr Lee has been able to actively gather hundreds of clinical evidence which has made it possible to be widespread in South Korea. Today, a substantial number of patients suffering from different symptoms are being treated his clinic every day.
Some readers may misapprehend my intention for this blog perhaps with the idea of promoting the clinic. However, I hope the readers understand that as a former Dystonia patient who has been through the difficulties, experienced the whole treatment process and now regained normality in life, it would be wrong for me to not attempt informing others in need. In fact, I realised it would be difficult to carry on with life without feeling guilty if I decided to sit back because I know only too well the frustration that other sufferers must be experiencing and the feeling of being alone with no one fully understanding what they are going through. For that reason, I am merely endeavouring to introduce this treatment as one of the options that may want to be tried by those who are desperate to live a ‘normal’ life.
2 thoughts on “ABOUT”
I agree with Andre, this is a really interesting and well developed blog. I would be most grateful if you could send me some links regarding Dr Lee’s research. You are right to tell your success story and we need to spread this information far and wide.
Helen Jones connectingheads.com
Thank you very much Dr Jones. I agree with you that we need to spread this information because not enough people including the professionals are paying attention to the structure. The concept is now widely recognized in Korea because of the success it has had in curing what other people know as ‘incurable’ disorders.
They have many research articles in Korean and they are currently working on articles in English. There is one study article that I have uploaded here https://curefordystonia.com/2014/02/17/about-2/. Resources are shared amongst doctors in the association (Association of TMJ Balancing Medicine) but I will ask if it is possible to get some more information that could be helpful. I will also see if I can find more resources somewhere else. He also uploads treatment cases (although faces are all blurred for privacy reasons) on youtube which may be useful http://www.youtube.com/user/yjleejunad/videos?sort=dd&view=0&shelf_id=1. He also has uploaded TV live consultations where he explains the treatment mechanism but they are in Korean unfortunately so I’m not sure how much of use it is for you.
It is very comforting to know that there are like minded doctors who I can share information with. I hope that soon many others will be able to accept the power of cerebrospinal functional medicine and realize that this is the answer to treating many chronic illnesses. For me, even a minor recognition definitely makes everything worthwhile and I really appreciate your supportive comments. Thank you.